Care and Health Information Analytics (CHIA) is a database which contains information that can be used by data analysts and researchers for looking at trends and patterns in health issues in the general population. The process can help to identify better ways of providing care to you and your family.
Data in CHIA is used to plan how health and care services will be delivered in future, based on what types of diseases are being recorded and how many are being referred to hospital etc. Data is also used to help research into new treatments for diseases. Examples of how this has helped patients with diabetes, acute kidney injury etc. can be found here. (link to page: Publications)
The information that CHIE sends to CHIA goes through a process called ‘pseudonymisation’. This means that any data items that could be used to identify you (e.g. name, date of birth, address) are removed. It is not possible for anyone using the data in CHIA to identify you.
The information in CHIA is kept as a physically separate database from CHIE. Only a small number of SCW staff have access to CHIA and these people do not have access to CHIE. This data does not include information typed in by hand, so there is no possibility of it containing references to family members or other people. It contains only coded entries for things like allergies and prescribed drugs.
Although the data in CHIA cannot and will not be used to identify you and will always be replaced by pseudonymised data, it could still be considered as personal data in certain circumstances. Under GDPR, CHIA still needs a legal basis to operate. The legal basis used by CHIA for processing ‘pseudonymised’ data for analysis is that Clinical Commissioning Groups and Local Authorities have a duty in law to provide good health and social care. In order to do that they need access to data about the populations they serve. The special category condition under which CHIA processes data is that these bodies serve the public interest in the area of public health, ensuring high standards of quality and safety of healthcare.
One of the things that we are proudest of, and indeed, sets CHIE apart from some other services of its kind, is the way that the data you share helps to shape and improve future treatments and services for all patients.
Access to the pseudonymised data held in CHIA is restricted to analysts who have signed an approved confidentiality agreement, which they are required to re-sign every year and every request for data for research analysis purposed has to be approved.
The types of analysis requested from the data held in CHIA ranges from information about the number of certain procedures carried out in GP practices (e.g. the number of leg ulcer dressings done by nursing staff) to studies based on particular diagnoses (e.g. dementia) or the prescription of certain medications (e.g. antibiotics). These research studies are used to help identify the need for future services in particular areas and to support our local health and care providers to achieve national targets.
Our research partners at the University of Southampton and National Institute for Health Research (NIHR) CLAHRC Wessex have used the data held in CHIA to support more extensive research studies. Examples of this include the earlier identification of liver disease; epidemiology of Chronic Kidney Disease including its prevalence and prognosis in older people; and observational cohort study of patients with COPD .
Click here for more details of publications using this data.
You have the right to choose NOT to share your information with CHIA. This is called ‘Opting Out’.
If you want health and social care staff to still be able to see information on CHIE for your care, but for this information not to be transferred to CHIA, please contact your GP practice and ask to be ‘opted out of CHIA’.
Your practice will then apply specific codes to your record held on their GP system. These codes will indicate that you ‘Dissent from secondary use of GP patient identifiable data’ and will stop your record from being shared with CHIA.
When this code is added, information is kept on CHIE to be used for your care, but is not sent to CHIA.
Your practice will inform the CHIE Systems Team that you have decided to opt out of sharing your information to CHIA and the team will check the system thoroughly to ensure that your record has been removed.
You can change your mind at any time about opting-in or out of sharing your information with CHIA.
Please follow the guidance HERE to find out more about opting-out and opting back in to sharing information with CHIA.